Finally, they called a doctor in that has more than 30 years experience practicing. He said it could be something called Henoch-Schonlein Purpura. (Try saying that 5 times fast!) Of course to err on the side of caution, they had us collect a urine sample which Sophie was very happy to provide, and they ordered some blood tests. I couldn't believe how great she did....She didn't cry or scream once, even when they put the needle in her hand to collect a blood sample. And she held very, very still as instructed. The phlebotomist actually said that she has never, ever seen a 3 year old behave so well during a blood draw.
One of the nice doctors rewarded her with a popsicle for being so brave!
This itself is rather scary, but will probably not be life-threatening. They don't know what causes it, but it usually crops up after an upper-respiratory infection. (We were all sick recently, so that makes sense.) It's an immune system reaction that causes damage to blood vessels in the skin, joints, intestines, kidneys and other organs. It doesn't require medication, is not contagious, and usually clears up within 6 weeks after onset.
Thankfully, both her urine and blood came back perfect, so her organs are not affected at this time. But that could change, as kidney problems occur in about 50% of the cases. Most are not serious or permanent, but of course in rare cases they can be....This scares the crap out of me. These problems can crop up at any time during the course of the disease. So Sophie will need follow-up appointments to check her urine for blood and her overall well-being.
So what do I have to look out for? Fever, abdominal pain, blood in stool, urine or vomit, discolored urine, coughing up blood, headache, seizures, and chest pain. Yikes! I am really hoping we avoid any of these problems, but I do realize it's likely that she will experience some of them as this disease runs its course.
So I am one petrified Mama right now. I am super scared. We're taking her back to the doctor on Monday or Wednesday, and I am hoping everything goes well. I hate seeing anything wrong with my babies!
Have you heard of HSP? Do you know anyone who has had this rare and very odd disease? I could definitely use some feedback and support right now!